This month is Ehlers-Danlos Syndrome awareness month (in America). But I thought it would be a good opportunity to share a little about my journey and how Ehlers-Danlos Syndrome (EDS) effects me.

EDS is a genetic (usually inherited) connective tissue disorder. Of which there are 13 sub-types. EDS is also a syndrome this mean that there are a wide range of symptoms and manifestations that can differ greatly amongst effected individuals.

Connective tissue is found throughout the body and is likened to the ‘glue’ that holds the body together. When you have faulty connective tissue almost any organ or system can be affected. Some of the more prevalent systems effected by EDS are: Autonomic Nervous Systems, Gastro Intestinal, Mast Cells, Joints.

My Journey to diagnosis was LONG and complicated but I was formally diagnosed with EDS earlier this year.

EDS to me is like an overarching umbrella that helps most of my other conditions etc make sense.

#ehlersdanlos