I don’t ever really wish I didn’t have one…. I do have moments where I wish I didn’t have condition/s. Much like I don’t ever really wish i didn’t have glasses but I do have times where I wish my vision was better…. (Though I absolutely hated my nasogastric feeding tube – the one that went up my nose).

The journey to getting a feeding tube can be quite harrowing and scary as you watch yourself wither away and become weak and wonder how low your bloodwork can possibly get whilst trying to force more and more food down hoping against hope and constantly doubting yourself thinking maybe you could try this or that or maybe you are doing this wrong….. basically crash dieting but with the intention of gaining weight…… that by the time you get a feeding tube and once your over the initial shock and have figured out how to ‘plug in and set up’ it is such a relief and is on the whole so simple and routine.

My Feeding tube for me I just another tool that enables me to function and live better, for my it is a positive thing, without it I wouldn’t be functional. It’s just another pair of ‘glasses’. I can even accessorise with different covers 😍

I am not defined my feeding tube anymore than I am defined the colour of my hair. Yes it forms part of my overall picture and identity but it is merely a tool I use.

Thank you for taking the time to garner a deeper understanding of tube feeding this week. It has been surprisingly cathartic and enjoyable.